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Archive for the ‘News’ Category

Wanting to Conceive & Stopping Methotrexate Medication | Part 1

Tuesday, August 30th, 2011

I wanted to share my experiences of being off methotrexate for the past couple months. This happened once I stopped Birth Control because the risk of getting pregnant while on methotrexate is a very bad idea. The FDA warning states the following:

“Methotrexate has been reported to cause fetal death and/or congenital anomalies. Therefore, it is not recommended for women of childbearing potential unless there is clear medical evidence that the benefits can be expected to outweigh the considered risks. Pregnant women with psoriasis or rheumatoid arthritis should not receive Methotrexate”

Since I took my IUC Mirena out back in June; I decided to stop my treatment of MTX. I am waiting for an appointment with my Rheumatologist which will be next month as I would like to become pregnant in the near future. This has not been an easy battle. I have experienced a lot of pain coming back into my joints and mornings have yet again become a nightmare. I am now taking 1 prednisone pill each night to help counter act this and so far it seems to be working well. My hopes are that like others my RA will go into remission once I do become pregnant. This shows yet another obstacle I have to overcome because of my RA and I’m still learning how to achieve normality with the simple things in life. So although it’s been difficult to deal with the past couple months I know the outcome will be rewarding. I would like to continue to update on my experience throughout this process and maybe reach out to others and give hope that it is possible to still start a family even if you have RA.  I own my RA it does not own me and it will not stop me from doing what I want in life.

It scares me to know how serious some drugs are that I have to take and really makes me think about the benefits vs the cons of being on these medications. After just being off MTX for almost 3 months now really shows me how bad my condition really was without medication and even though I wish biological drugs such as Enbrel worked alone I do see that when used in combination with MTX it makes a tremendous difference!

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Rebecca B.
Homebase:Moreno Valley, CA
Blog:http://skye-uruz.blogspot.com/
Diagosis: Rheumatoid Arthritis and Sjogren’s Syndrome

The College Experience | Rheumatoid Arthritis

Thursday, August 11th, 2011

When I first got diagnosed with my RA I didn’t think about the effect it would take on finishing my schooling. Shortly after as my RA progressed I found it harder and harder to keep up with school I ended up dropping many classes a year ago and I decided it’d be best for me to take a break and really get to know my RA and how it works. For example, I now know that I would strive more in taking afternoon classes or night classes because in the early mornings I’m still sore and it’s hard to get out of bed. Well the time has come again for me to finish up my first degree I started. I am very excited to finally get this finished and I was thankfully blessed with financial aid this year so I don’t have to worry about money.

My college has a disabled student program that allows me to get extra help. A few of those extras would include taking an extra break from the class as needed to stretch because sitting in one position for to long can make me sore. Then I was also offered priority registration which was so nice! I didn’t have to fight to get the classes I needed this semester. Then I am also able to get a more comfortable desk and chair, which is great. There are many more perks available to help disabled students and i’m so grateful for that because it does make attending college much easier.

I start classes August 29th, so now I’m just preparing for it. I ordered my books online and started getting school supplies. I only signed up for 2 classes to avoid putting to much stress on my body and I’m very positive that it will work out nicely this semester. I will be taking American Politics online and Physical Anthropology on campus. I will continue going to work part-time so I’m hoping I can handle it all. I will be updating you all on my progress and how I am handling College and RA throughout this upcoming Fall semester.

I know I have the strength to get through this and continue where I left off before I had RA. I will just need to accept the new challenges and find new ways to do things. I have to keep reminded myself that I own the RA and RA does not own me! This will be a whole new experience and I will utilize the tools I need to succeed!

Any tips on how you navigate around the bumps of chronic pain in your School life? I have a feeling that I will find that planning is key.

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Rebecca B.
Homebase:Moreno Valley, CA
Blog:http://skye-uruz.blogspot.com/
Diagosis: Rheumatoid Arthritis and Sjogren’s Syndrome

Planning Life’s Milestones with an RA Diagnosis

Tuesday, July 12th, 2011

I never would have thought that two years from now I would have to plan major life choices. Couples now usually have children on accident. I always wanted the perfect scenario; Get married, have a house, maybe a few dogs and then have children! I just never realized I’d actually have to do it all in order. This is for sure a good thing though. I see people all around me having babies at young ages and struggling because their relationships don’t work out with the children’s fathers. I would never want to be in that situation.

Having RA means lots of planning and prepping. The main reason for this is because of Methotrexate which can cause birth defects. So when the time comes I have to be off my medicine for at least 3 months before trying to conceive. So as you can see, not only do my medications effect my health but they impact my life choices! This really shows how serious Rheumatoid Arthritis can be and many people don’t understand the stress RA causes.

In the beginning I was worried that I wouldn’t find a life partner who would want to deal with being with someone who is “sick”. I felt like I’d be a burden. Then I met my current boyfriend and everything changed. I can’t wait to spend the rest of my life with him. He is always so supportive and is always there for every doctor appointment. I couldn’t have asked to be blessed with a better man & I can’t wait until we get married and start a family! I know it may never get easier, but as long as he is by my side it gives me something to push forward for.

From marriage to children, which are big life events; RA also effects small events in my life as well. When we go on trips to Disneyland for example. I have to always make sure I have back up medications such as pain pills because sometimes my feet will hurt a lot! I’m always prepared for anywhere I go. I never would have thought I would need to be so aware of the things I do and the choices I make. I’ve realized that sometimes my RA diagnosis has it’s bonuses. I really think I’ve matured a lot since my RA. I’m not as careless anymore and make better choices for myself. So RA may have turned my life upside down but I’m slowly turning it upright again and in time I believe I will be at peace with myself.

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Rebecca B.
Homebase:Moreno Valley, CA
Blog:http://skye-uruz.blogspot.com/
Diagosis: Rheumatoid Arthritis and Sjogren’s Syndrome

Auto Immune Diseases Linked To Mirena?

Tuesday, July 5th, 2011

About two years ago I switched my birth control from the Nuva Ring to the Mirena IUD. I wanted to cut the cost of my birth control and loved everything I read about Mirena. It was easy to use and good for FIVE years! Plus I didn’t have to take a pill every day! Never did I think 2 years later I would make a connection between my Mirena and my Rheumatoid Arthritis. So what made me start to think about this? I honestly have no clue. Just this past weekend I was thinking, and as I was thinking I started remembering. Now I am a very forgetful person! It’s very hard for me to remember a lot of things but this, I will never forget.

My RA started about two years ago. What causes RA? Well it can be many different things but there is no scientific evidence as to what causes the immune problem. It could be a combination of things such as the environment, a virus, a foreign object to your body, bacteria etc. Now I did lots and lots of research when I first got diagnosed. I tried to read as much as possible. I wanted to know WHY this happened to me. Well that clarity never came. Will it ever? Probably not.

So back to my main point, I was thinking this weekend about how my RA was never active until I had the Mirena placed in me. I know you’re probably thinking how could the Mirena possibly have anything to do with that? Well I was on birth control hormones before with no problems of signs of RA. So I knew that it wasn’t the Mirena hormones that would have been the problem. So I started doing some research. Mirena has silicone in it, I would have never thought silicone was bad. Until I started making connections. Breast silicone implants were linked to auto immune diseases in woman. Bingo! Not only do I have this thing in my uterus that shouldn’t be there but it’s also partially made of silicone! I used my trusty friend Google to try and hunt down others just like me who may have experienced RA after Mirena placement or auto immune problems in general and came across a shocking amount. Turns out i’m not the only one with this theory.

Monday morning I went to the doctor and had the Mirena IUD removed right away. From what I’ve read many people noticed a difference in how they felt as soon as a few months, others it took about a year before they saw results. I’m not getting my hopes up but it’s really mind boggling to me that this could have been a possibility, and now I may be stuck with it forever without remission. I did put in a report to the Mirena safety department just in case. I’m hoping to see some results and will make another post about this topic if I do happen to see some sort of improvements. My plan is to stay on my medications for the time being and see what happens and maybe taking a chance by stopping them to see how I will feel!

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Skye B.
Homebase:Moreno Valley, CA
Blog:http://skye-uruz.blogspot.com/
Diagosis: Rheumatoid Arthritis and Sjogren’s Syndrome

A Day in the Life of Rheumatoid Arthritis

Thursday, June 30th, 2011

I woke up this morning around 9:30. I didn’t feel like I got enough sleep. I went to bed last night kind of late. I find it hard to get a good nights rest sometimes in between the flares I sometimes experience. I had my weekly Methotrexate shot yesterday so I was expecting to feel a bit off today. Most of the time I feel sick shortly after the shot and the day after. It was difficult to get out of bed but I was able to. After a shower I was supposed to be getting to work but felt to sick to my stomach to go in today. I used my FMLA for today and now I’m stuck at home trying to get some much needed rest. I feel bad for calling out but I know that it’s always the best decision to listen to my body otherwise I end up feeling worse.

I decided to spend most of my day swimming in my pool. I’ve learned that swimming is very good for your joints and it’s recommended by my doctor because it puts less strain on them. So it’s a nice way for me to work out without the extra stress on my body not to mention is was super hot outside! It went well and was refreshing. I’m thinking about trying to do this as much as possible since we are in the summer months and the pool water is the perfect temperature right now. Hopefully this might help cut back on the amount of pain I experience in my joints!

I don’t go back to work until friday so I have the next few days to rebuild my strength. It’s very important for me to watch what I do and where I go on a daily basis. I don’t want to wear myself out to quickly for the week and be stuck in bed. So far I’m doing good this week. I take my Enbrel this Thursday so that will help mid-week and give  me an extra boost. I found that it’s better to take my MTX and Enbrel a few days apart because I found this to me the most effective way in balancing my pain my body experiences. So now it’s time for my rest and hope for a better day tomorrow!

That’s just a little glimpse into what one of my days look like, sometimes I’m well enough to go to work and other times I unexpectedly can’t, like today. Overall on a scale of 1-10 today I’m feeling about a 6. I had a doctor appointment on Monday as well and will be discussing some interesting things in my next guest blog post, so stay tuned for that!

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Rebecca B.
Homebase:Moreno Valley, CA
Blog:http://skye-uruz.blogspot.com/
Diagosis: Rheumatoid Arthritis and Sjogren’s Syndrome

 

One Downside to My Over Active Immune System | Rhuematoid Arthritis

Monday, June 27th, 2011

It’s no fun having an auto immune disease, especially when you get sick from it and have to stop current medication to allow your body to heal easier. I’ve had to deal with this a handful of times over the past year but this time was by far the worst that I’ve ever experienced! I developed Shingles on May 20th and it took a good month to finally heal up completely. It could have been caused by many things such as stress, or perhaps it was because of the medications I’m currently on which are Enbrel and Methotrexate.

Whatever the cause this was not an experience I would ever want to deal with again! One of the downfalls of being on RA medications is that it lowers your immune system intentionally. It’s just one of the risks I have to take in order to battle my RA. When I do get ill I always stop my RA medicines because I feel like it’d help my body more as far a recovery. I was told by my doctors that it is not a necessary thing though, still I trust my own body more then I do my doctors.

Usually by the time I’m healed (which does take longer then a healthy body) my RA is in full motion again. I find that when I’m sick my RA goes into some sort of “remission” stage because my body is focusing on the other sickness instead. It makes some sort of sense to me and i don’t mind it either but once I am recovered and my RA returns, boy it comes back with a vengeance! This is a difficult stage to deal with. I have to start both my shots back up and use some pain killers to help until by body gets back into the swing of it’s normal routine of medications. It usually takes a good month before I am finally feeling some relief. I wish that I wasn’t as prone to illnesses but this is just something that comes hand in hand with have an auto immune disease like Rheumatoid Arthritis. It’s important that I remember to take precautions for myself such as staying away from others who are sick with a cold, the flu and other contagious things. I also think it’s important to take vitamins as often as possible and each lot’s of veggies from, diet does play an important role!

In my experience although it is difficult to deal with other sicknesses on top of RA it’s always important to stay as positive as possible even though some days I feel like it’s just so difficult. I find that talking to others with RA helps a lot since they know and have experienced the same things as I have. Without communication with the RA community I couldn’t imagine going through this alone.

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Skye B.
Homebase:Moreno Valley, CA
Blog:http://skye-uruz.blogspot.com/
Diagosis: Rheumatoid Arthritis and Sjogren’s Syndrome

Working on Your Feet with RA and the Miraculous Aid of Shape Ups

Tuesday, May 31st, 2011

Having RA and having a job can be really tough. Some days I don’t even feel like stepping out of my bed but those bills won’t just take care of themselves and more importantly I need to have medical insurance. In order to get medical insurance I must go to work because that’s how I’m able to afford it. Over the past couple years it’s only become more stressful and complicated for me. I work in retail and that requires lots of physical activity, such as standing on my feet for long periods of time.

I’ve come across a pair of shoes that has helped a lot. Sketchers Shape Ups, I know they look a bit funny but I swear by it that these shoes help cut back on the strain that my feet feel. Around the time I got diagnosed I was on the hunt for a better pair of shoes and a co-worker recommended them to me so I figured why not, I might as well try them out! Well I’m now on my second pair and they really do make a difference. I’ve come to learn how important a good pair of shoes on when you have to stand on your feet for 4-8 hours a day.

Shoes aren’t always the issue though, I do get “flares” which cause my joints to hurt a lot, this happens mostly in my wrists, fingers, knees and more recently my hips. You’d think my job would hate me by now because of how little I work and how often I need to call out sometimes. I am grateful to have what’s called “FMLA” that protects my job so I can’t get fired for needing time off work. So I am able to use my FMLA in combination with state disability for now. I am trying to find a job that is easier on my body, some sort of office/desk job where I won’t have to be on my feet so much but I haven’t had much luck yet, though I am confident that I will find something better for me, compared to what I have now.

It’s difficult to sit and explain to managers my condition but I often try to speak to them and co-workers as much as possible and when they ask “how are you feeling today?” my usual reply is just a simple “I’m okay” because in my eyes I’ll never be good. I just have my bad days and my okay days. With Rheumatoid Arthritis there are no good days and I’m still trying to accept my condition, but I do still grieve for the life I could have had in terms of health. I do know it is important to educate the people I work with so they can have some what of an understanding of my condition, especially because some days I need to take an extra break or I may even require additional help. I hope to find a career one day that will suit me well and allow me to make a decent living, but until then I must push forward and work with what I got now.

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Rebecca B.
Homebase: Moreno Valley, CA
Blog: http://skye-uruz.blogspot.com/
Diagnosis: Rheumatoid Arthritis and Sjogren’s Syndrome

Healthy on the Outside & A Walking Pharmacy on the Inside

Friday, May 13th, 2011

Now that you readers have had a glimpse into what it was like when I was first diagnosed with Rheumatoid Arthritis & Sjogren’s syndrome, I’d like to share my next inside look on what it’s like to be a walking pharmacy. With the diagnoses I knew that I’d be on some sort of medications, but I had no idea it’d be more than one kind. I also didn’t know how serious the drugs I would be taking for the rest of my life are. I’d like to share a photo down below of almost all the pills I have been on within the last year in a half.

Enbrel Shot - Rheumatoid Arthritis

This lovely picture shows you the pain killers, NSAID’s, steroids, chemotherapy and antibiotics. If you still think I look healthy, take a closer look into my medicine bag before assuming this isn’t a serious disease. My whole purpose for guest blogging here on this website is to raise awareness and educate the newly diagnosed. After being diagnosed, I wanted to know right away whether or not there was a cure, which there isn’t. Then I wanted to know what types of drugs I would have to be on to help me manage my life and to help make the pain go away as much as possible.

I started with Methotrexate, the chemotherapy drug.  Yes, the one they give to cancer patients. This little yellow pill still makes my stomach turn thinking about it. I wasn’t able to handle it so I switched over to the injectable version and that has helped a lot. I no longer get stomach aches and feel sick. Then, I also was on put on an anti-inflammatory drug called NSAID’s to help with the swelling. That wasn’t enough. My Rheumatologists added in the dreadful steroid known as Prednisone, but it doesn’t stop there. I also had to take something to protect my stomach, Omeprazole. Lastly, there is folic acid which is just a vitamin. I was on this method for a few months, and although I did see improvements, it just wasn’t enough. My RA was fighting back as much as possible.

So we started discussing the next step, biologics.
Bio what? Yeah I was not sure what this meant; all I knew is that it must be serious. So I did some research and decided to try Enbrel. Thankfully, I have insurance and was able to apply for their support program which brought the cost way down. I get this in a pack of four and use the auto injector. This means I give myself this shot once a week. I was terrified the first time, but soon enough got the hang of it. I do get site reactions sometimes and my leg gets sore for a day or two but it helps a lot. So I was able to get off all my medications except Methotrexate and Enbrel, and have some success with this combination. My life and how I do things has changed dramatically, even with my medications that I am currently on.

When I think about drugs I think about side effects, and have to weigh my options with the pros and cons of each one.
I am still not stable with my RA and have been looking into other medications. I realized that I needed to use my medications in combination with healthy lifestyle changes. This includes eating no red meat and trying hard to stay away from other inflammatory foods such as potatoes, tomatoes & dairy. I have found that on days where I follow my food guidelines and eat healthy (limit sugar & no fried food as well) I do feel much better. I also need to be careful to stay away from friends and family when they are sick because I do catch things much easier due to my immune system being suppressed with my medications. When I do get sick I take twice as long to heal compared to a healthy person. I’ve had to train myself to take in all these adjustments and although I feel like giving up sometimes I try to remember all the good things I still have in my life and having RA has made me a stronger person.

Rheumatoid Arthritis Guest Blogger Rebecca for Achieve ClinicalGuest Blogger Bio
Name: Rebecca B.
Homebase: Moreno Valley, CA
Blog: http://skye-uruz.blogspot.com/
Diagnosis: Rheumatoid Arthritis and Sjogren’s Syndrome 

 

 

Understanding The Dangers of Teenage Smoking

Thursday, May 12th, 2011

Teenage smoking continues to be a serious health risk. From emphysema to cancer, many
teenagers are in danger of developing life-threatening illnesses. These ailments can cause
irreparable harm to the body, while affecting loved ones both physically and emotionally.

While there are several teenage smoking cessation products, not all can guarantee expedited and
lasting results. These items can also be a costly investment for teens and families. In order to
effectively counter teenage smoking, there are a few simple steps you can follow.

For teens that smoke, it is important to speak to parents or teachers. This enables teens to explain
the reasons why they smoke, which may include social or other forms of pressure. It also allows
adults to explain the long-term dangers of smoking and to offer viable options and choices.

Like most teens that smoke, they simply do not know or fully understand the risks involved.
These include heart attack, stroke, and diminished energy level. Teenage smoking cessation can
be achieved with clear and effective dialogue.

Primary care physicians can also assist with teenage smoking cessation. From new medicines to
anti-smoking plans, they offer an array of medical treatments that may achieve desired results.

Read New Articles About Others Personal Experiences with Clinical Trial Conditions

Friday, May 6th, 2011

In the weeks to come we’re going to be changing the content you’ll see on the Avail Clinical blog. Up until now most of the news stories relate to different clinical trial discoveries or medical information about clinical trials that Avail Clinical is involved in. The point of this is that we would like our blog to serve as more of a resource or online community for those of you that find yourself recently diagnosed with one of the conditions or progressive diseases that we run clinical trials for.

If you have a condition that we run clinical trials for (ex – Rheumatoid Arthritis, Lupus, Diabetes) or are involved with a disease specific initiative that you would like to bring awareness to then please email our Community Manager at don@achieveclinical.com to learn more about becoming involved in our guest blogging program.